Back at the Cancer Rodeo: Everyday Magic, Day 972

Self-Portrait With Rainbow & New Cancer Diagnosis

When I had breast cancer 17 years ago, I learned some things about resilience, the ability to bounce back. There’s nothing like being thrown off a bucking bronco to discover that yes, you can hit the ground, hard, and yes, you can hobble back to your feet and strength. There’s also nothing like community and all the love that made me upright again, then fed me homemade soup at regular intervals.

In 2002, I discovered I had breast cancer, lymph node involvement, and also the BRCA 1 genetic mutation — which increases the risk of breast cancer, ovarian cancer, and other cancers (even melanomas, like what I now have). There were three big surgeries, akin to holding onto a mechanical bull in the middle of a tornado,  surrendering to the anesthesia, and waking up to nausea and clear skies. There were also months of chemo, mounting one unbroken pony  after another with the certainty that I would be thrown off and I would throw up, and my white cells and mojo would plummet. I’d be overtaken by a numbing white sleeve of sleep at any moment interspersed with steroid-induced  closet re-organization at 3 a.m.  Ken, my family, friends, and big community love got me through, filled our refrigerator with blintzes and chocolate pudding for the six months of chemo, drove kids to and from piano lessons and hospital visits, brought me a TV and VCR (we had neither beforehand) so I could zone out on Steve Martin movies, and talked me through fear storms.

In the years since, I’ve understood that the cancer rodeo grabs hold of many of us as patients and just about all of us as people who love people with cancer. Having facilitated writing workshops for people with cancer and other serious illnesses at Turning Point in Kansas City for the last 17 years, I’ve also seen miraculous displays of grace: people who find the strength to open their hearts to life and make new meaning. From all of this, I’ve learned a few rodeo tricks and tips from the pros:

  • Generally, the hardest part is the excruciating limbo between “you have what sure seems like cancer” to a precise diagnosis and treatment plan.
  • New and mind-blowingly innovative medical treatments are coming to fruition all the time.
  • Energy healing and other forms of healing (whatever works for you) — acupuncture, massage, yoga, nutrition, walking with friends, laughing our asses off together — at best can spark startling revelations, and at worse, can dissolve incapacitating fear.
  • Denial is not a dirty word: it’s a necessary coping mechanism along with dimming the harsh lights of what’s likely ahead for us. We can’t live fully while carrying a backpack full of big rocks all the time.
  • Statistics are somewhat meaningless in the intimate space of being alive as a singular person connected to other people in the here and now. I’ve seen people with stage 4 cancers kvetching and sharing jokes 15 years out, and I’ve seen the opposite, too.
  • Cancer doesn’t change who we are; nor does treatment. I feared I wouldn’t still be myself on heavy doses of chemo, and yet I was totally still me, maybe even more so. Big dances with mortality reveal to us more of who we innately are, and that is a priceless gift of perspective.
  • There’s incredible good company at the cancer rodeo: people with the best senses of humor and get-up-and-go gumption because of close encounters with the life force. These are the best people you’ll ever meet or even be.
  • No one is immune to mortality.

Which leads me to now: some fuzzy vision in my right eye and a lot of blinking since March led me to an excellent ophthalmologist, Dr. Brown,  who, after two hours of shining lights into my eyes while having me look right or left and taking various images, had to tell me there was definitely cancer there. My stomach plummeted, and I felt the floor fall away. The rest of the day included talking with my wonderful integrative physician, Dr. Sandal, and my fantastic oncologist, Dr. Soule, in between a lot of phone calls, numbness, loss of appetite (a rare thing for me), occasional freak-outs at what wild animals I would have to ride and fear over if I would get to the other side intact. I also petted my cat a lot.

Yesterday, Ken, my soul brother Ravi, and I went on an inner space mission to Dr. Desai, a superb ocular oncologist at St. Luke’s Hospital. Did you know they can do an ultrasound of your eyeball? I know that along with how contrast dye of the eye produces clear images and that if you subtract the shortest man in the world from the tallest, you get Shaq O’Neal (“Who Wants to Be a Millionaire?” was booming in the waiting room). The extreme possibilities were extremely dire, and while I won’t know for completely sure if the rest of my body is clear until after the PET scan and brain MRI, when Dr. Desai said it was a treatable melanoma, I burst out crying in relief.

What’s next is a tiny gold button full of radioactive pellets planted behind my eye before being removed five days later. Then, aside from potential and probable long-term side-effects and vigilant monitoring for the spread of micro-melanomas, I’m done with this rodeo, and maybe with the cancer rodeo circuit for good…..or not, which is a big reason all this can be so scary.

The view from here

Now it’s time to ready myself for the rodeo and other metaphoric renderings of what’s ahead, knowing I will find a way through thanks to dedicated medical professionals, gifted healers, and especially my best-beloveds, particularly Ken, who gets to go with me yet again through a mess of tests and challenges. While I don’t own a pair of red cowgirl boots, I can barely ride a horse, and I can’t yodel to save my life, I can be brave enough to let all these people and procedures save my life. Then, probably sometime this summer, l’ll be on the other side with a more resilient spirit,  more grateful heart, and maybe a cowboy hat too.

Thank you for reading this and being with me at the start of all this.

 

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A Snake, A Wedding, and Faith: Everyday Magic, Day 972

Somewhere in Brazil a bunch of people stopped their car on a highway, got out, and signaled other drivers to hold off so that a very large snake could cross the road. When I saw the video, I was amazed at how calm and calming the humans and, to some extent, the snake were in doing what it took for the snake to arrive at the other side. It also made me happy to see members of my own species, known for how often we get it wrong when it comes to the more-than-human world, get it right.  Such moments help me re-ignite my faith in this world.

Which leads me to a wedding — not of anyone I know personally but of a writer I admire, Anne Lamott, who, three weeks after she got her Medicare card, married writer Neal Allen.  As she told the New York Times, the one thing she still wanted in life was a good marriage. At age 65, she got it.  Shortly afterwards, she tweeted, “So never, ever give up, because God is such a show off.”

There are things happening all the time that can tip us toward greater faith in what’s possible and what’s actually even happening, and most of which don’t involve big snakes or fabled weddings. Despite the horrors and heartbreaks, bad decisions, evil renderings, and apathy resulting in terrible suffering, there’s also this: small acts of goodness or big leaps into love. There’s the incessant smell of lilac all around me right now as I type on the porch, my own marriage giving me so much inspiration and strength for a long time, and a so breeze lifting and releasing the cedars and walnut trees. There’s new green and old green unfurling and a whole lot of bird song.

There’s also the baby snake I carefully tricked the cat into releasing from his mouth so that the snake could live (and live outside our house). Grace abounds, and believing in a better world helps us glimpse it, shepherd it across the road, or meet it at the altar.

Alice: Praising My Mother-in-Law: Everyday Magic, Day 957

Yesterday, we held the memorial service for my mother-in-law, Alice Elizabeth Wells Lassman (obituary here). After crowd-sourcing some of the details for this poem from her children (including my husband), here’s what I wrote for the woman who was and continues to be so big in my life and heart. I’m deeply grateful for her raising some a wonderful son and being an amazing grandmother to my kids and all my nieces and nephews.

Alice

She was a fierce protector of all she loved,

a passionate holder of babies and truths,

and oil-painting and apple-pie-making devotee,

who fell in love with her driving teacher

and made with him a tumble of generations.

A lover of outside and tolerator of inside, she praised God

in the nuances of cardinals landing and starlings rising,

as well as in this very church, holding her candle high

on Christmas Eve, pouring her voice into the rolling river

of the hymn. She believed in angels and ice cream,

making something out of nothing, and the utter perfection

of each of her grandchildren. She was a mother defender

of the Jayhawks and the moral order, the power of reading

and making her own ketchup from homegrown tomatoes.

A sycamore admirer and petunia lover, she planted

a carnival of impatiences each spring, and because

she didn’t suffer foolish invasives lightly, she crawled

on her hands and knees to clear vinca from lily-of-the-valley.

She was a benevolent ruler of guinea hens,

letting them live out old age in the shade of the elms.

She was a rescuer of baby bunnies, abandoned kittens,

confused dogs, and even a monkey once.

She journeyed to the center and ends of thousands of

Reader’s Digest condensed books, Science News articles,

and Guideposts meditations. A traveler of great cheer

who delighted in Swahili phrases in Kenya, surprise blossoms

in Thailand, and the Grand Tetons in Wyoming, she thrilled

with each new landing and returned home scrapbook-bound.

A voter and girl scout leader who believed in the strength of women,

she was a happy and frequent camper, a teacher of self-reliance

who made sure her daughters and son knew how

to whip up hamburger soup, do their own laundry,

and find their way around a library and prairie.

She was sure she knew, and that you had better know too,

the difference between right and wrong, and the price of freedom.

She was a stick-by-your-guns-even-if-you’re-the-only-one

beacon for babies and mothers, justice and hard work,

the essential goodness of humans, and the gift of being alive,

which keeps her heartbeat beating in time with ours

love by love by love by love by love.

Photos: (from top): Alice with her great-grandson Lucas, Alice and Gene with all their kids in the 1960s, Alice celebrating her 95th birthday, Alice and her twin plus her other sisters, Alice and a gaggle of grandkids, all looking cool