When the World Opens Its Heart to My Ears, Cicadas and All: Everyday Magic, Day 979

It has been a time out of time, or perhaps more accurately, a time landed right in time. Unable to use my eyes as much, I realize how most of my waking hours are encompassed in seeing. Like Dracula, I also have to forgo direct sunlight and generally aim my days toward deep shade. Add to this the pain (thankfully very much receding!) of this eye cancer odyssey, and I burrow deeper into the dark, so far from my regular natural habitat. But there’s nothing like pain and healing to guide an anxious mind out of its usual hamster cycles and into the real.

For a writer who loves reading, movies, watching James Corden Cross-walk theater videos, and visually scanning the world for so much of my orientation, this has also been a deal. But for all ills, there are remedies, and the best one I discovered is to go outside about 8:30 p.m. each night to the chartreuse padded chair Daniel once got at a thrift store for his first college dorm room, and sit still on the night porch as dusk travels to dark. It’s taken a while for me to stop resisting what this body has been telling me lately in no uncertain terms: shut up, and close your eyes already. But when I do, the rewards are immense.

In July, twilight comes calling with a cast of thousands. Sitting out there last night with Ken, my eyes closed for an hour, we counted at least six different kinds of cicadas, starting with the low soft click of the green winged cicada, then the back and forth mild buzzsaw of Tibicen bifidus. Eventually, we got to the steady sweet roar of the plains cicada, a sound I describe as he wheels of a wagon moving across the prairie although the wheels, spokes, and wagon are made of cicadas, and of course, the wagon is hauling cicadas. (If you want to hear these and others, check out this site).

Tree frogs leapt into the fray for short or long stretches, and of course, the crickets showed up as they always do when it comes to getting any party started. These thousands of insects and amphibians not only coordinated their wild rushes into circle hums or steady chirps of green joy with their fellow specie comrades, but they also blended their sounds — something beyond and encompassing the essence of music — altogether. The plains cicada stretched their journey song into multiple cycles, then stopped on a dime. The tree frogs jumped in the gap, then paused. Suddenly, everyone from all directions started again.

We listened, my dreams merging me with the sounds as I dosed in the chair. I wanted to lie down to sleep in the house, but Ken urged me to wait for the telltale call of night, heralded by the Katydid. “When will the Katydid start?” I asked, and just then, the Katydid whisper circled over us. “Listen carefully,” he said. “There are two Katydids,” which we quickly named Katy Did It and Katy Didn’t. (Hear Katydids here).

Back inside, I sat in the beautiful healing darkness, serenaded by the hum of the air-conditioner, the snore of the dog, the padded rush down the halls of the running of the cats. From outside, I can hear the barred owl calling. There’s also the drumming of my hands on the keyboard, writing this before I forget, mostly with my eyes closed while the world opens its heart to my ears.

Please support me creating a lot more writing, transformative writing workshops, and a new podcast series on the power of our stories! You can support me on Patreon, get cool perks and weekly inspirations for your creative life for as little as $3/month. More here.

Oh, For the Relief of Pain!: Everyday Magic, Day 977

When the anesthesiologist and nurse started me on Fentanyl last Wednesday, I told them I loved them both, and I meant it. By the end of the five days of hosting the gold heart of radioactive seeds in my right, the pain around in my eye and temple was so intense I was up most of the night before surgery. But once I got to the surgery prep room, told the good people around me of my nausea and pain, all manner of relief ensued: the nurse gave me a small cotton ball with peppermint oil for my nausea, then inserted some additional meds into my IV. The anesthesiologist gave me a Tylenol, then okayed the heavier narcotic which proved to miraculously fast-acting. In the body space where big pain resided, peace and joy rose over the land of my life within minutes.

All of this has me thinking a lot about the lengths I could go to to outrun pain, which are considerable. I can’t imagine slapping a kitten or stealing a car, but my mind along with the rest of me would toddle up desert mountains without water for pain relief. When I consider the times in my life when physical pain has ruled the roost — those three natural childbirths, a horrendous bout with an upper G.I. bleed once, and a history of dancing with migraines since I was a teenager — I know that when I’m in the grip of something painfully gripping, I would easily beg at the altar of pharmaceuticals for anything to take that pain away, and if that’s not possible, put me to sleep until it’s over. I have no doubt that had I given birth in a conventional hospital rather than a marvelous free-standing birthing center, I would have happily called out, “yes, please!” if an epidural was offered, forgetting my commitment for as healthy a birth as possible for the baby.

Then I consider the kind of chronic pain so many people I know live with — constant back agony, heart-numbing depression, myriad sharp pain throughout the body without rhyme or reason, and so many other physical and mental states equivalent to the ROUS (Rodents of Unusual Size) in The Princess Bride. There’s also the pain of the social body born of prejudices and biases: constant attacks on the self for not being white or straight or thin or whatever else enough. Lately, there’s the immense and needless pain of what is being done to thousands of migrant children, locked in cages without food or bedding, alone or crowded without enough ventilation or tenderness to survive on without incurring damage. We may not be experiencing such pain directly, but that’s the thing about pain: knowing it in enough intimacy often helps us tilt open the door of our own heart so that we can better see and respond to the pain of others.

My 12 days of surgery and migraine tussles suck of course, but perspective tells me it’s just a drop in the fuck-it bucket of what so many others are going through right now, whether it’s a six-year-old Guatemalan boy trying to keep a toddler fed on a concrete floor in Texas, a neighbor down the street carrying the shattered pieces of her grieving heart to the empty bed tonight, or someone who cuts me off in traffic because he was up most of the night with shoulder pain.

“Oh, for the relief of pain!” is a human chorus, coming back around at every turn if we look widely and listen deeply enough. What those of us harboring pain would do to relieve it is just as vast and complicated, and although this is surely what I always warned my students against — vague generalizations — I’m vaguely generalizing that a lot of pain in this world is fed by what we do or try to do to relieve the root of suffering. The opiate crisis, a rash of suicides, our collective issues with over-consumption that severely and negatively impact our climate and even our own survival — they all create ripples of pain, often without resolving the original pain or with replacing it with something even more vexing.

But that’s the thing: not all pain can be relieved. Some of the Turning Point writers I work with live with acute and constant pain from years of harsh chemotherapy or progressive neurological diseases. Some of my friends, surviving without beloved partners or parents or siblings, carry that vivid emptiness with them daily. Some of the people who brush past me in the food co-op or bank are hurting in an alphabet of pain most people can’t imagine.

All we can do is say it: I’m hurting. All we can do is ask: please help, or please just sit here with me cursing this embodied moment of sharp edges. All we can tell ourselves is, “Yup, it’s bad now, but I have hope it will be better tomorrow,” even if we’re repeating this refrain tomorrow. And all we can say is “I love you” to the world, even if temporarily disguised as a smiling nurse and anesthesiologist on the small island on what hurts surrounded by the bigger beauty of life.

Please support me creating a lot more writing, transformative writing workshops, and a new podcast series on the power of our stories! You can support me on Patreon, get cool perks and weekly inspirations for your creative life for as little as $3/month. More here.

Naming the Turtles on a Healing Journey: Everyday Magic, Day 974

Meet Orlando Bloom!

Throughout my healing journey — the cancer diagnosis and visits with three oncologists,  the big-time scans and fears, the  joys and reliefs, the waiting and preparation — I’ve been naming turtles. While this might be true metaphorically, it’s also truly happening beyond the world of symbol,  sorrow, and surprise. I have a friend, Ben Reed, a professor at Washburn University, who has been tracking and studying ornate box turtles in southeast Kansas, and he’s given me the honor of naming each turtle. Because Ben is a turtle whisperer, he’s kept me busy.

It started when Ben dropped by one day with a beautiful large female he found, then numbered to track for his research. I told him she was surely worthy of a name made of letters, not just numbers, and he agreed. That was last summer, and this spring, he found Lucille again because of the transmitter he attached to her last year. He also re-found Samantha, Theodore, and the three-toed box turtle Rudolph. Lately, because of rain in biblical proportions, he’s found a bumper crop of new turtles for me to name.

I named Demeter, Persephone, and Priscilla — a trio of goddesses — the day after my brand new ocular oncologist said there was a good-sized melanoma in my right eye. I was sad and exhausted that morning, and it helped to distract myself by thinking of turtle names for three strong, old wise women turtles, or maybe it wasn’t a distraction at all, but a way to take in the larger  breathing and changing world.

Ben and Ursula

In between phone calls with my regular oncologist’s office to set up scans and tests, I was further connected to this bigger world by naming Yoda although all turtles look like Yoda. Then again, many of these turtles also look like Gandalf (the Green), which I  bestowed on a very old male, surely is the incarnation of the previous Gandalf. I mean, if he can keep go from Gandalf the Gray to Gandalf the White in one lifetime, surely, he can come back as a turtle in another.

Just home one afternoon after a much-needed session with my therapist, I had more turtles to name: Leah, from the Old Testament, who Jacob had to marry to get to his much-desired Rachel. I always thought Leah had a bad rap, so why not let her be a vibrant turtle of intricate patterns?  There were also two teenage turtles, both female, so I went with Amber and Topaz, assistants to the Wicked Witch of the West in The Wizard of Oz. I played one of them in the only play I was ever cast in (and not for a lack of auditioning through my childhood and teenage years), a small production held at a camp I attended when I was 11 years old.

The night before my PET scan, when I was pacing the deck talking with friends to calm myself from anxiety and a healthy dose of claustrophobia, I was interrupted by the need to name turtles: one very old, so I went with Saul, an old Jewish man from Brooklyn, Sparkle for a lively young female, and Ponderosa for a sunny young male.  The next morning,  buoyed by energy healing from my friend Ursula in Germany and a good dose of pharmaceuticals, plus a lot of slow breathing to relax myself. I also was lifted by the thought of naming more turtles, which was helpful since later that day, Ben texted me with a magical female I named Ursula.

Yoda, but then all turtles look like Yoda

After the MRI a week later, another big challenge for me involving a small tube, big prayers, Versed and fentanyl, I was so relieved to have gotten through that I was utterly delighted to name Orion after the constellation of the same name.

Later, before driving to the ocular oncologist with a fear storm in my digestive system because of how suddenly my eyesight diminished, I named Thor and Odin. Such mythological names helped me envision greater courage. Coming home that day, Ken and I were greatly relieved to discover that the tumor wasn’t growing, and my eyesight was being impinged instead by fluid build-up in my eye (made worse by, guess what?, stress!). As my eyes slowly undilated from Anime-sized pupils to more normal ones, I got to name a large and beautiful female Leslie Jones (from SNL fame) because badassery is also the name of the game now.

There’s also a pregnant Chrysanthemum and Clematis from a day the turtles from a day I was in a botanical mood,, and Sunshine  who I named when a storm was bearing down, both around and within me. And let us know forget Goldy and Silverado, two western-style guys (at least how they looked to me) with yellow and golden touches.

Demeter, Persephone, and Priscilla: Three Goddess Gals

All these turtles, even the ones who struggle, seem to have a beautiful grip on the life force. When Ben found a female turtle upside down in a just-burned field, so light because of near-starvation because of an invasion of bot flies, we both agreed she needed an especially strong name, so I suggested Herculia. He brought her to his lab, where she became a mascot for the Washburn biology department, everyone cheering her on after Ben removed multiple bot flies, parasitic jerks who has destroyed her back legs and possibly her digestive tract. He didn’t expect her to survive, but six weeks later, she’s still alive, and just yesterday, she finally ate something of substance, a worm, so maybe she’ll make it after all. While Ben will need to make some kind of wheel prostheses for her back legs, she may one day propel on her own.

It doesn’t take a rocket scientist or a turtle biologist to see the parallels between us messy humans and these ancient and resilience beings, although I’m sure the turtles outrun us in patience and even grace. Come fall, they go underground to hibernate through the winter, then emerge into the mud, rain, and wind of messy and changeable spring, finding their footing through storms and droughts, trials and tenderness. However the weather and light shift, they persevere.

Turtles pre-date humans, and from what little I know, their ancestor proto-turtles may be as much as 220 million years old.  Ben explains that many species “are virtually unchanged morphologically since the dinos, which is pretty incredible.”

Yes, incredible indeed, and so is simply holding a turtle, marveling at their ability to live below and among us,  navigating water and land, earth and fire with a hard shell that tells their stories of age and art and inside that shell, a beating heart committed to life. Surely we are all, turtles all the way down, on our own healing journeys, so let us pause and name what gives us strength and sight.

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Back at the Cancer Rodeo: Everyday Magic, Day 972

Self-Portrait With Rainbow & New Cancer Diagnosis

When I had breast cancer 17 years ago, I learned some things about resilience, the ability to bounce back. There’s nothing like being thrown off a bucking bronco to discover that yes, you can hit the ground, hard, and yes, you can hobble back to your feet and strength. There’s also nothing like community and all the love that made me upright again, then fed me homemade soup at regular intervals.

In 2002, I discovered I had breast cancer, lymph node involvement, and also the BRCA 1 genetic mutation — which increases the risk of breast cancer, ovarian cancer, and other cancers (even melanomas, like what I now have). There were three big surgeries, akin to holding onto a mechanical bull in the middle of a tornado,  surrendering to the anesthesia, and waking up to nausea and clear skies. There were also months of chemo, mounting one unbroken pony  after another with the certainty that I would be thrown off and I would throw up, and my white cells and mojo would plummet. I’d be overtaken by a numbing white sleeve of sleep at any moment interspersed with steroid-induced  closet re-organization at 3 a.m.  Ken, my family, friends, and big community love got me through, filled our refrigerator with blintzes and chocolate pudding for the six months of chemo, drove kids to and from piano lessons and hospital visits, brought me a TV and VCR (we had neither beforehand) so I could zone out on Steve Martin movies, and talked me through fear storms.

In the years since, I’ve understood that the cancer rodeo grabs hold of many of us as patients and just about all of us as people who love people with cancer. Having facilitated writing workshops for people with cancer and other serious illnesses at Turning Point in Kansas City for the last 17 years, I’ve also seen miraculous displays of grace: people who find the strength to open their hearts to life and make new meaning. From all of this, I’ve learned a few rodeo tricks and tips from the pros:

  • Generally, the hardest part is the excruciating limbo between “you have what sure seems like cancer” to a precise diagnosis and treatment plan.
  • New and mind-blowingly innovative medical treatments are coming to fruition all the time.
  • Energy healing and other forms of healing (whatever works for you) — acupuncture, massage, yoga, nutrition, walking with friends, laughing our asses off together — at best can spark startling revelations, and at worse, can dissolve incapacitating fear.
  • Denial is not a dirty word: it’s a necessary coping mechanism along with dimming the harsh lights of what’s likely ahead for us. We can’t live fully while carrying a backpack full of big rocks all the time.
  • Statistics are somewhat meaningless in the intimate space of being alive as a singular person connected to other people in the here and now. I’ve seen people with stage 4 cancers kvetching and sharing jokes 15 years out, and I’ve seen the opposite, too.
  • Cancer doesn’t change who we are; nor does treatment. I feared I wouldn’t still be myself on heavy doses of chemo, and yet I was totally still me, maybe even more so. Big dances with mortality reveal to us more of who we innately are, and that is a priceless gift of perspective.
  • There’s incredible good company at the cancer rodeo: people with the best senses of humor and get-up-and-go gumption because of close encounters with the life force. These are the best people you’ll ever meet or even be.
  • No one is immune to mortality.

Which leads me to now: some fuzzy vision in my right eye and a lot of blinking since March led me to an excellent ophthalmologist, Dr. Brown,  who, after two hours of shining lights into my eyes while having me look right or left and taking various images, had to tell me there was definitely cancer there. My stomach plummeted, and I felt the floor fall away. The rest of the day included talking with my wonderful integrative physician, Dr. Sandal, and my fantastic oncologist, Dr. Soule, in between a lot of phone calls, numbness, loss of appetite (a rare thing for me), occasional freak-outs at what wild animals I would have to ride and fear over if I would get to the other side intact. I also petted my cat a lot.

Yesterday, Ken, my soul brother Ravi, and I went on an inner space mission to Dr. Desai, a superb ocular oncologist at St. Luke’s Hospital. Did you know they can do an ultrasound of your eyeball? I know that along with how contrast dye of the eye produces clear images and that if you subtract the shortest man in the world from the tallest, you get Shaq O’Neal (“Who Wants to Be a Millionaire?” was booming in the waiting room). The extreme possibilities were extremely dire, and while I won’t know for completely sure if the rest of my body is clear until after the PET scan and brain MRI, when Dr. Desai said it was a treatable melanoma, I burst out crying in relief.

What’s next is a tiny gold button full of radioactive pellets planted behind my eye before being removed five days later. Then, aside from potential and probable long-term side-effects and vigilant monitoring for the spread of micro-melanomas, I’m done with this rodeo, and maybe with the cancer rodeo circuit for good…..or not, which is a big reason all this can be so scary.

The view from here

Now it’s time to ready myself for the rodeo and other metaphoric renderings of what’s ahead, knowing I will find a way through thanks to dedicated medical professionals, gifted healers, and especially my best-beloveds, particularly Ken, who gets to go with me yet again through a mess of tests and challenges. While I don’t own a pair of red cowgirl boots, I can barely ride a horse, and I can’t yodel to save my life, I can be brave enough to let all these people and procedures save my life. Then, probably sometime this summer, l’ll be on the other side with a more resilient spirit,  more grateful heart, and maybe a cowboy hat too.

Thank you for reading this and being with me at the start of all this.

 

Please consider supporting my Patreon campaign so that I can create moretransformative writing, workshops, and even a podcast series on the powerof words. More here: https://www.patreon.com/Carynmg

Surprises From 2018: Everyday Magic, Day 960

“So instead of New Year’s resolutions, I drew up a list for 2019 of experiences that had already passed: a record not of self-mastery but of genuine surprise. 1. My oncology nurse became a dear friend. 2. Even in the hospital I felt the love of God. 3. Zach is under the impression that I never get tired. These are my small miracles scattered like bread crumbs, the way forward dotting the path behind me.” — Kate Bolwer

Surprises around the bend

In reading Kate Bowler’s evocative essay, “How Cancer Changes Hope” and revising poems for my next book, How Times Moves, I’ve been making a U-turn from manifestations for the future back towards surprises from the past. What delights me most in life — and maybe you too — is exactly that: how something far better and more amazing happened than what we pined for, depended on, or planned, like right now when, in middle of writing this, Bruce Springsteen’s “Surprise, Surprise” starts playing on KCMG (my large itunes collection).

My moments of genuine surprise include these which all happen to be moments of education too:

  • I realized, while in the bathtub on Memorial Day, that I was going on leave from teaching after measuring my life in semesters for 33 years without a break in the pattern. Further thickening the plot, about a month into my leave, I caught myself up on how my soul had actually decided not just to take off a semester but a full year. A corollary surprise was that I had organized enough extra work and income to take such an unpaid leave.
  • One-on-one coaching is so much akin to holding someone’s hand as we step into the wild landscape of their creative callings. It’s also something I love doing.
  • I’ve fallen more deeply in love with Lake Superior, my husband’s laughter, what a crockpot can do, all three of my kids, walks along the curving perimeters of cedars on shining days, yoga, the pink shimmering ring around the full moon, making art (parfait dyeing, sculpey, watercolor pen play, etc.), homemade butter, reading, long lunches with dear friends, mackerel clouds, Call the Midwife, Shay the Dog and Miyako and Sidney Iowa, the cats, and music I hear, witness, and make.
  • The death of a very central being in our family — my mother-in-law — isn’t at all what I dreaded it would be, but instead a panoramic immersion in fierce and tender emotional states, all lit from within by love.
  • Each of the 25+ reading and workshop I did for my novel Miriam’s Well felt completely new and alive.
  • Ecstasy, or at least some dose of contentment and satisfaction, is readily available to me when I embrace the seasonal tilts here and now, whether driving up autumnal mountains in Vermont rich with goldening maples or looking up into the snow dazzling down in Kansas or walking to the edge of a peninsula on a cold day in Madison or sitting on a sweltering porch on a too-still summer day full of birdsong and cicada roar. It’s even available right now on a blank-sky day while the rain bounces off the deck outside and the cats sleep inside.
  • Sometimes a new friend is so obviously a life-long old friend that it’s a puzzlement to answer the question, “so how long have you two been friends?” (thinking of you, Laura), and sometimes an old friend chimes back for new discoveries (yup, you, Ravi). Related to this, the friends who hold my stories are godsends when it comes to reminding me where I came from, what I got through, and what freedom I inhabit right now to follow what calls.
  • Health and maintaining it is just about more everything that I imagined. Likewise, certain things (I’m looking at you, chocolate mega dessert) that used to embody great mouth joy can quickly trigger a Rube Goldberg-like chain of pain.
  • It’s an old adage to be careful with or lower our expectations, but I expect we can keep expecting gratitude and surprise, which leads me to share this poem from my new collection-in-the-works:

No One Tells You What to Expect

A downpour as you’re running down Massachusetts Street

in sandals that keep falling off in unexpected puddles.

Ice on power lines. The dying who won’t die,

then a single bluebird dead in your driveway.

The deadline or lost check spilling the orderly papers.

The part that isn’t made anymore for the carburetor,

or the sudden end of chronic sinus infections while lost

in a parking lot looking for where you parked the car.

Your best thinking won’t be enough to save your daughter

from a bad romance or your friend from leaving the man

she’ll regret leaving. Across town, in a quiet gathering

of maples, someone drops to her knees in such sadness

that even the hummingbirds buzz through unnoticed.

The dog you thought gone returns wet and hungry,

the phone call reports the CT scan is negative,

and your husband brings you a tiny strawberry,

the first or the last, growing in your backyard.

Life will right itself on the water when the right rocks come along,

so put down your paddle and let the bend tilt you

toward what comes next: the bottoms that fall out,

the shoes that drop, the wrong email sent while

a cousin you lost touch with decades ago calls,

his voice as familiar as the smell of pot roast

while that song you forgot returns like an old cat.

Expect to be startled.